Monthly Archives: June 2013

Wristbands are here!

Very many thanks to Nick Megson for sorting these out! They look absolutely awesome! They’re going to be on sale in and around the area til they run out – there are only a thousand and they’re going like hotcakes … Continue reading

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Hi hi, Hi ho, it’s off to hospital we go

We’ve managed to get an ’emergency’ (little e!) with the neuromuscular consultant and respiratory consultant to see if we can get to the bottom of why Beatrice never seems to be well. Fingers crossed that they can come up with … Continue reading

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We are, we aren’t, WE ARE!

When I found out Despicable Me 2 was coming out this year on 28th June, I put it in the diary and PROMISED Beatrice I would take her as soon as it came out. The first one is one of … Continue reading

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Beatrice and Pimble the kitten

The lovely thing about a kitten for Beatrice is that he’s small enough for Beatrice to hold and stroke easily. We’re really lucky that they’re both so lovely 😀

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Beatrice is going to be on Japanese national TV! Earlier in the year Beatrice took part in a documentary for NHK, the Japanese equivalent of our BBC – And it’s going to be on TV on Wednesday! Yay! The documentary … Continue reading

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Deja vu

Was going to post some stuff about our trip to Cambridge to get the new seat unit yesterday, but am absolutely shattered, so that will have to wait. Our facebook accounts may have been hacked, so please let me know … Continue reading

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The dragon’s cave

We’re heading southwards tomorrow on our epic pilgrimage to the home of the Snapdragon in Cambridge. It’s going to be a long day! However, it’s just me and the princess on this road trip, so I’m quite looking forward to … Continue reading

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Beatrice and henry playing with snappy

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Beatrice finally got some candy floss!

Thought I’d not taken any pictures at the fair yesterday. Fortunately I got this snap while we were recovering from the tea cups. One very, very happy girl. xx

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Beatrice’s new blog

Meet Beatrice! She’s our amazing 4 year old. She has Spinal Muscular Atrophy Type II – But does it let it stop her? Oh no! She’s the most resilient person I’ve ever met – nothing phases her or diminishes her … Continue reading

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